Post by JCGarcia on Jun 30, 2007 12:37:59 GMT -5
All,
I wanted to post about a bike ride that is sponsored sponsored by 10th Gear Christian Youth Cyclists, that is a program of the Village Congregational Church, Whitinsville, MA in the United States. It is supported by the Boy Scouts of America. How wonderful is that for this group to help support dmd!
The Jett Foundation is trying to raise awareness for duchenne/becker muscular dystrophy.
Look at the link below that tells the amazing story of the bike ride and how they are raising money, awareness and educating people on duchenne muscular dystrophy.
www.boston.com/partners/worldnow/necn/landingpage.html?clipid=151 6444&topVideoCatNo=80769&c=80769&autoStart=true&activePane=info&LaunchPageAdTag=homepage
You can go to the link below to follow their journey and post a message on their new message board.
jettride.org/
We can wish them well on their journey. If we can't make it to the routes they are stopping we can post to let them know we are out here and encourage them on this trip. I just posted a quick message.
I often refer other families to this website and Fight for a Future because both offer a lot of good information and has such an international group of people.
So I thought wouldn't it be wonderful for those on this bike ride to hear from people from around the world? It would show strength in the fight against duchennes united around the world.
So, if you get a chance go in and post.
Take care all,
Julie
I wanted to post about a bike ride that is sponsored sponsored by 10th Gear Christian Youth Cyclists, that is a program of the Village Congregational Church, Whitinsville, MA in the United States. It is supported by the Boy Scouts of America. How wonderful is that for this group to help support dmd!
The Jett Foundation is trying to raise awareness for duchenne/becker muscular dystrophy.
Look at the link below that tells the amazing story of the bike ride and how they are raising money, awareness and educating people on duchenne muscular dystrophy.
www.boston.com/partners/worldnow/necn/landingpage.html?clipid=151 6444&topVideoCatNo=80769&c=80769&autoStart=true&activePane=info&LaunchPageAdTag=homepage
You can go to the link below to follow their journey and post a message on their new message board.
jettride.org/
We can wish them well on their journey. If we can't make it to the routes they are stopping we can post to let them know we are out here and encourage them on this trip. I just posted a quick message.
I often refer other families to this website and Fight for a Future because both offer a lot of good information and has such an international group of people.
So I thought wouldn't it be wonderful for those on this bike ride to hear from people from around the world? It would show strength in the fight against duchennes united around the world.
So, if you get a chance go in and post.
Take care all,
Julie